Jesy Nelson’s mother has offered an emotional glimpse into the family’s home life following the devastating diagnosis of the singer’s twin daughters.
Janice White showed cameras a spare bedroom filled with medical supplies, feeding equipment and toys that Ocean Jade and Story Monroe are unable to use because of their physical needs.
The twins, who were born prematurely in May 2025, were later diagnosed with spinal muscular atrophy Type 1, also known as SMA1.
The rare genetic condition causes severe muscle weakness and can affect movement, breathing and swallowing.
Jesy, 34, has previously spoken about the enormous emotional impact of learning that both of her daughters had the condition.
Her family’s daily reality will now be explored further in the upcoming documentary Jesy Nelson: Life Changing.
A room hidden from Jesy’s sight
In one particularly moving scene, Janice takes viewers into a bedroom where the family stores the twins’ medical equipment and items that are no longer suitable for them.
“This is actually quite organised,” she explains while showing the room.
However, she reveals that much of what is stored there carries painful memories for her daughter.
“It is all their stuff they can’t use and all their medical stuff, their feeding tubes and stuff,” Janice says.
She adds that seeing the equipment downstairs can upset Jesy, so the family keeps it in the spare room instead.
The scene highlights the less visible side of caring for children with complex needs — the supplies, adaptations and emotional reminders that become part of everyday family life.
Toys bought before their needs were understood
Janice then reveals a brand-new elephant-shaped rocking chair that had been purchased for the girls.
The toy had never been used because it did not provide the specialist support they require.
“It is all things we bought, like toys, and nothing was suitable because everything has to be specialised because of their spines,” she says.
Janice suggested donating the unused items to a hospital so that other children and families could benefit from them.
The room represents the future Jesy and her family originally imagined for Ocean and Story, before their diagnosis transformed almost every part of their lives.
Ordinary toys, chairs and equipment must now be carefully assessed to ensure they support the twins safely.
Jesy opens her home to cameras again
The former Little Mix singer first documented her pregnancy and the twins’ premature birth in the Amazon Prime Video series Jesy Nelson: Life After Little Mix.
Her follow-up documentary, Jesy Nelson: Life Changing, will examine the family’s experiences since Ocean and Story were diagnosed.
It will also follow Jesy’s campaign for newborn screening for SMA to be introduced more widely across the United Kingdom.
Early diagnosis can be particularly important for progressive conditions because it may allow families and medical teams to discuss treatment and support sooner.
Jesy has used her public platform to argue that parents should not have to wait until visible symptoms emerge before receiving answers.
Ocean and Story turn one
The twins celebrated their first birthday in May, surrounded by balloons and pastel decorations.
Jesy shared photographs showing her holding both daughters as the family marked the emotional milestone.
The celebration came after a year filled with hospital appointments, medical uncertainty and major changes to the motherhood Jesy had initially imagined.
Alongside the birthday images, she shared a narrated poem set to soft piano music.
The piece compared parenting a child with additional needs to preparing for a dream holiday in Italy, only to discover that the plane has landed in Holland.
Although the destination is different from the one expected, the poem explains that the new journey can still contain beauty, love and meaningful experiences.
It has long resonated with families raising children with disabilities, although some parents have expressed differing views about the metaphor.
“My whole heart and soul”
Jesy used the poem to reflect on accepting a life that looks different from the one she pictured during pregnancy.
Her birthday message ended with an emotional declaration to her daughters.
“Happy Birthday my Ocean and Story,” she wrote. “You are my whole heart and soul. I love you more than you will ever know.”
The singer has frequently spoken about the profound love she feels for the twins, even while being honest about grief, fear and exhaustion.
Her documentary is expected to show both sides of that experience — the difficult medical realities and the joy Ocean and Story bring to their family.
Split from Zion Foster
Jesy shares the twins with rapper and singer Zion Foster.
The couple began dating in 2022 and became engaged, but later ended their relationship following the immense pressure surrounding their daughters’ diagnosis.
Jesy has said she was the person who decided to end the engagement after the family’s health crisis changed their relationship.
Despite the split, she and Zion are understood to remain close and continue co-parenting Ocean and Story together.
Their priority remains providing the twins with the care, stability and support they need.
A family adjusting to a different future
Janice’s brief tour of the spare room reveals how deeply SMA has changed life inside Jesy’s home.
The feeding supplies show the level of medical care involved.
The unused toys reflect plans that had to be reconsidered.
And the decision to keep those items out of sight demonstrates the emotional weight Jesy continues to carry.
Yet the family is also finding ways to move forward.
They are seeking specialised equipment, celebrating milestones and hoping unused items can help other children.
Jesy is also turning her experience into a campaign that could potentially support families facing similar diagnoses.
The room may contain reminders of what Ocean and Story cannot use, but it does not define their lives.
For Jesy, Janice and the rest of the family, the focus remains on surrounding the twins with love while creating a world adapted to who they are — not the future others once expected for them.
